Hello and welcome!!! Whether you stumbled upon this blog by accident or intentionally, my family and I encourage you to read on.
This blog is too late to save our mom, our grandmother (Marge/"Nanny"), and possibly some of your own family members struck by Dementia, but that is not a good enough of a reason to stand by and do nothing.
To get to the point, my family started this page
--> and to tell Mary’s story.
I only ask you for you to read this first post, and after that, it’s up to me to keep you engaged.
To Raise Funds – Without research, there will continue to be no medicine and no cure. Most FTD cases are not inherited. Most are spontaneous (unknown cause or related family history), some are genetic (the family has some history of dementia, but there is not a clear connection between cases, and some are hereditary (an autosomal dominant gene is passed down from one generation to the next). My family is in the 10% that is hereditary. Are you familiar with the fear of Huntington’s disease? Our case of FTD harbors the same fear, 50/50 chance of passing it on to offspring. I will discuss this in more detail in a later post - but this is meant to be an intro – I’m just reeling ya in! (Is it working?)
In May, 2013, Heidi and I (siblings) ran the Pittsburgh Marathon in honor of my mom and Nanny. Additionally, we will continue to write in this blog and hold other functions/races to keep building on our initial fund raising goal. Every penny matters. Every penny is a cent closer to giving the next generation a shot at holding on to their mind, body and life. I will discuss later on where specifically your donation goes, but it is ALL for research - The Bluefield Project -- based out of University of California-San Francisco (UCSF) but works closely with other universities in the United States as well as the United Kingdom in order to utilize each other's findings rather than compete against each other. So please keep reading but also please consider the “Donate” button in the right column.
“Penny for their Thoughts”
Together, we will walk through the before, the during, (positive and not-so great times—there are some good ones ;)) and with a sad, yet peaceful heart, the after.
My heart goes out to the over 15 MILLION Americans that are caregivers to dementia stricken loved ones. If sharing Mary’s story helps others going through this, and lets them know they are not alone, then it’s worth it.
From Mary, Marge and all of the Hall's/Flanagan's... ~thanks~
"Something is up with mom? The first signs" .....