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| Christmas 2008 - Heidi, Dad, Mom, Tina, Betsy |
By now, mom has had FTD for at least 2 years, officially diagnosed
1 year ago. She can no longer drive and her
speech is down to words or memorized phrases. “Yes, No…Really and truly “ or “Oh dear…” are
her responses to nearly everything. We’ve
had a few incontinent incidences, but overall, just as long as we planned accordingly,
everything went smoothly. She is walking
a bit slower, but the inevitable physical decline, fortunately, has not set in
yet. Her swallowing and ability to eat
were top notch (almost
too top notch….pretty
soon we would have to child lock the cabinets).
A passerby would not know anything was wrong. Her ailments were still primarily focused in
communication and language. And with
that came decreased attention span and understanding of simple commutative tasks
such as talking on the phone, writing and reading.
The past 6 months, I’ve been on a civilian deployment in Iraq. While away I began to notice with each phone call
home it was harder and harder to talk to mom.
Sometimes she would forget she was on the phone and just set down the
receiver and walk away—leaving it off the hook for hours. When I could get on the internet on base, Skype
worked a lot better because she could physically see me.. Her face would light up with a smile when she
saw me, I would ask her what my name was and usually she got it right. I
would say a silent prayer every time – knowing one day I would ask her and she
would not know anymore or not be able to express it. Conversations would not last very long. I
would ramble about my day (which was typically the same as the day before), and
when I could see I was losing her attention, I would try to sing a song with
Mom – music is stored in a different part of the brain, so even though she
could not string a sentence together, she could single simple songs from
beginning to end. So if that meant
singing Jingle Bells in July, by gosh, we sang Jingle Bells in July!
Now that I have returned, I need to move back into my apartment in
Baltimore.
Between 1998 and 2007 Mom has moved 5 kids in and out of dorms, apartments and houses at least 20 times. She is the only person I have ever met that enjoys helping others move in and
out. I personally have already moved 7
times in the past 5 years, and Mom has helped me every….. single….time.
I did not know it at the time, but this would be the last time Mom
would be physically able to help me move.
And boy was it a memorable one.
On a sunny Saturday, we loaded up my dad’s truck and took the 4
hour drive from Pittsburgh to Baltimore.
Dad had warned me of Mom’s new tick but he didn’t have to – it was
apparent within 5 minutes. Every police
car we passed, she pointed her index finger to the road and softly said, “Cop.” And when she wasn’t finding a hidden cop, she
was looking at the speedometer and advising you on your speed – “too fast.”
“Mom, I’m going the speed limit.”
“Too fast”
I didn’t mind. At least I
would not get pulled over with her in the car.
….
About 3 hours in, the windows were down, country music on the
radio and we were enjoying the ride. By
now, I was also checking the speedometer religiously (thanks, Mom). But at this moment, I was enjoying the song
on the radio, and we were going downhill on an empty highway.
And then came the sirens.
I look over at Mom and smile reassuringly.
She smiles back but is clearly worried.
She understands we just got pulled over.
We were on I-70 and so for safety reasons, the police officer
comes to the passenger window instead of the driver’s. I roll down Mom’s window and hand over my
license.
“Registration, please, Ma’am.”
“Yes Sir, looking for it now – I’m in my dad’s truck and I’m not
sure where he keeps it.
Mom looks at the officer, nods vigorously, “Yeah.”
I’m scrambling to find the registration. I check the multiple compartments of the center
console. Then all possibilities on my
side – the door, the visor, under the seat (anyone that knows my dad knows that
he does not keep this in the
normal locations. Knowing him, he has
some off the wall reasoning as to why the registration should be sealed in a
water proof cover and taped to the back of the mud flap or undercarriage of the
car).
Meanwhile, the officer continues to ask me questions, which I try
to listen to and answer as I continue my search.
“Do you know what the speed limit is Ma’am?”
“Do you know how fast you were going?”
“Did you say this was not your car?”
“Whose car is it?”
Mom excitedly nods and replies to all the officer’s
questions: “Yeah, yeah, yeah….”
She has also joined me in the search for the registration.
“Oh dear…” she says and opens the glove box.
Officer: “Where are you headed, ma’am?”
Mom: “Oh dear…” and looks at me, not really sure what to do or how
to react to this situation.
Officer: “Ma’am, I know you want to take care of your daughter,
but I need her to answer the questions.”
Me: “She has dementia, sir, she doesn’t know what you’re saying.”
“Oh….” He looks forlornly at Mom.
But Mom isn’t phased! Mom: “Yeah!! Yeah” she nods with absolute sincerity at the officer.
And….with that the mood is lifted; it takes everything in me to not laugh at this point.
Mom goes back to the glove box and pulls everything out.
She hands the police officer something.
“Here.”
I look over.
It’s a map of West Virginia.
“And…here??”
Pennsylvania.
“Just go with it” I say to the officer.
He politely takes each item Mom hands to him. And within moments
he has at least five maps in his hands. (Jeeez,
Dad, how many maps of PA can you use at once?!?!! I’m not sure who I should be more worried
about at this moment. Mom or Dad???)
As I continue what has turned into a full blown “Quest” for the Holy
Registration, I answer a few of the officer’s questions. Well, really I just
started rambling to fill the air as I look.
“
It’s my Dad’s truck. I
have no idea where he puts things. Things are never where you expect them to be. I never drive this truck. My mom and I are headed to Baltimore where
she’s helping me move back in. I just
got back from my deployment.” I indicate to the truck bed, full of furniture
and boxes.
“My mom has been watching my speed the whole time, it just got
away from me on that downhill.”
Mom chimes in: “Yeah, yeah”
Still nodding, still excited!
Officer: “Where were you deployed?”
“Iraq – Victory Base, with the Army.” I say in anticipation of his
next question.
(Ok, yes, I am pulling the “Iraq card”
– can’t hurt, right?? So maybe I left
out the part that it was the Corps of Engineers and it was a civilian
deployment rather than active duty…. But
gosh darn it – I wore the body army, I left the wire. 95% of my work was with
Iraqi’s rather than Americans. It counts!!).
Officer: “My nephew just got back from Afghanistan – I
appreciate your services.”
“Thank you, Sir” (It’s working….)
Mom: “Really and truly”
Side note – the officer is still
holding the maps. J
“Here it is!!!”
What felt like an eternity later, I
hand over the truck registration. It was
in an plain white envelope at the very bottom of the center console. If I remember correctly, it was labeled “tickets”
or something that had absolutely nothing to do with a car or registration. Thanks, Kerm.
I hand it over. He hands the maps back to my mom. “I’ll be
right back.”
She looks down at her hands,
bewildered, then over at me. She starts
laughing. I have noticed more and more that
when she is nervous, her reaction is laughing.
I start laughing too. What else
can you do?
“I guess he didn’t need those.” I
shrug and take the maps from my mom and put them back in the console.
“No…” (My tone was implying a “no”
answer; so I am not entirely sure if she understood what I had said or if she
was just providing an appropriate response based on my tone).
The officer reappears and hands me a yellow
slip.
“I’m going to let you off with a
warning. Please be careful and slow
down.” He’s looking at Mom while saying
this, not me.
“Thank you so much, sir. And yes, I will.”
“Take care now,” He looks like he
wants to hug Mom. I wonder for a moment
if he’s shocked by her age (she’s 57 but honestly, looks 50; she has aged well)
or does he know someone with Dementia and he’s thinking of that person right
now. Either way, Officer and I share a
silent “I get it,“ moment when he finally pealed his eyes away to look at me
before he walked away.
“And thank you for serving our country”
And with that last statement……..solemn
moment gone as quick as it came!
I, again, found myself trying with all
my might to not smile or laugh.
“Thank you, Sir. We’ll be careful.”
I roll up the window. And let him pull away first.
“AHHHHHHHHHH!!!!! Hahahahah!!!!” I turn to Mom and wrap my arms her!
“You don’t realize it, Mom, but you
got us out of the ticket! You did good. You did real good.”
She’s absolutely beaming. She may not
understand every detail. But she knows
we just got pulled over and she knows it ended well and she knows I’m proud of
her and she did something right.
“But…..let’s not tell Dad. Let’s just keep this between us.”
I am nodding intensely and she mimics
my nodding.
“Yeah…no. no.”
And I knew—I knew at that moment she
actually understood that last phrase.
That was mom saying “Yes,
let’s keep it between us. No, let’s not tell Dad.”
Every once in a while a glimpse of Mom
shines through. Today was one of those
days.
I turn the truck back on and we
continue on our way to Baltimore, where, for one final time – Mom will help me
move.
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Nanny, Heidi, Tina, Megan, Mom - Heidi's HS graduation 2005. Nanny and Mom both were diagnosed with FTD 3 years later
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| Mom with her brother, John |
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